Thursday, November 6, 2008

Treatment Update

Hello all. I want to provide you with a brief update on where things are with dad's treatment schedule. Mom, Dad and Cassie went over to meet with two doctors at UNC-Chapel Hill yesterday to discuss treatment options (I wasn't able to make the trip over). Dad began the day with another MRI (likely better at UNC-CH than the one done in LB) and upon closer inspection, they found what they believe to be a 4th lesion on the top of his brain. Then, they met with the first doctor of the day. He is a specialist that does the cyber knife treatment I mentioned on Monday. The doctor laid out the details on what the cyber knife treatment is, what it does and what the side effects are. Essentially, they go in for one treatment that takes about 2 hours and use a system of lasers to burn off the tissue of the affected areas. As of right now, the main side effects we are aware of-- and these are just possibilities-- are being very tired and the possible loss of some motor skills. The doctors indicated that these are potential side effects, but they can't say for certain whether or not they will actually happen. So, we'll pray that they do not. The cyber knife treatment is mainly designed to eliminate the spots that are currently there, but they do not treat any other cells that may be lurking under the surface.

Then, they met with a neurologist to discuss in more detail what the game plan should be to treat all of this. The neurologist let them know that melanoma is one of the hardest cancers to kill because it reacts differently in different bodies. But, with that said, the doctor laid out a plan that is designed to aggressively go after it and eliminate it from dad's body. So, here's the plan:

1. Dad will undergo the cyber knife treatment on Friday afternoon (tomorrow) at UNC-Chapel Hill. It will take about 2 hours and he has to remain perfectly still during the treatment. They created a head mold yesterday to use on Friday to help him remain still. During this treatment, the lasers will be used at different angles to burn off the affected tissue. Dad should be able to go home soon after the procedure is finished and he'll need lots of rest. As far as we know, there will only be one cyber knife treatment session. The downside: it will take about 4 months to get the results of this procedure as they will need time to allow the tissue to either be absorbed by the body or hang around waiting to be removed. During that time, they will be looking to see if any new cancerous cells have appeared. If none, then it looks good. If there are more, we go back to the drawing board.

2. Early next week, dad will go back over to Rex to meet with Dr. O and Dr. Wu. They will do a consultation to begin dad on whole-brain radiation. I know I wrote on Monday that it looked like we wouldn't have to do that, but the medical team at UNC-CH recommended it as a way to get any of the cancerous cells that are under the surface. It kind of makes sense-- you need to go after the root of the problem or you will always be dealing with whatever pops up. Still, it's kind of tough to hear. Nonetheless, the sessions will be done at Rex, they should take about 3 weeks (Monday - Friday) and last about 10 - 15 minutes per session. The side effects here include hair loss, weakness and potential loss of appetite.

The medical team we are working with is still very positive and focused on eliminating the cancer from dad's body. And that's exactly what we are praying for. Dad continues to stay positive about the situation as well, and that is critical as the next few weeks will be challenging.

I want to relate one final thought. I was listening to a Bible study on the drive in this morning and Dr. David Jeremiah was discussing the concept of thanksgiving, why we should thank God (in good times and in bad) and how hard it seems to do that. As he was discussing this, I thought about something that dad said to me yesterday. He was talking with the doctors and said, "you know, I eat reasonably well, I work out, I take care of myself and I'm just a little puzzled and frustrated as to how my body can develop this." And the doctors in turn replied, "you know we look at it a little differently. We see patients that come in having smoked a pack of cigarettes each day, they are significantly overweight and have other medical issues to deal with in addition to something such as melanoma. So we are thankful that in your case, all we have to deal with is the melanoma." And with that, dad was able to change his viewpoint and stay a little more positive about this situation.

I tell you that story to say this-- stay positive and look at the different possible perspectives of the situations you are facing in life. We are choosing to give thanks to God for a few different things: 1) that other than the melanoma, dad is in pretty good health. 2) that we live in an area with top-level medical professionals that are the best at what they do. Not everyone has access to that kind of care. 3) that we have a great network of support from family and friends like you.

Please continue to pray specifically for healing for dad and for this melanoma to be eradicated from his body. Pray for the medical team and that God will grant them the wisdom to know exactly what to do to treat dad. Pray for strength for our family as we help dad during the next few weeks.

As always, thank you for your prayers, kind words and loving support. And, be sure to keep up the comments as they mean a lot to dad.

Many thanks.

4 comments:

  1. Thanks, Jon, for continuing to keep us up-to-date with Norman's progress!
    I think both you and the doctors have wonderfully reframed Norman's prognosis with a strong emphasis on the positive, and you have thereby helped us all to give thanks in all circumstances [as Paul urges the Philippians (4:6,7)]. But there are even more positives: there is nothing in all creation -- not even this -- that can separate us from the love of God in Christ Jesus (Romans 8:26-39), and God knows everything that happens to us (Psalm 139).
    God is still here; He is not going anywhere. We are still here; we are not going anywhere either.
    May the peace of God and the grace of God be with you all in these days.
    with HIS love,
    Harvey

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  2. Good Morning Jon,

    Thanks so much for keeping us all updated on Norman's progress. GOD is so good. Carol and I pray that GOD will continue to keep your entire family positive and strong throughout this process. Specific prayers for complete healing has been lifted this morning.

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  3. I know the whole brain radiation is something you were all hoping could be avoided, but I guess the more aggressive you are, the better the chances are for complete healing. We have been praying for Norman every day and will continue to pray that God's plan is complete healing and nothing less. Thanks for continuing to keep everyone updated on your specific needs. We will lift you up tomorrow afternoon and hope all goes smoothly.

    Travis and Lori

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  4. Thanks for continuing to update the blog, Jon. Keri and I are keeping close tabs on Norman's progress, and we continue to pray (Keri has commented a few times that she can't ever remember praying this hard for something) as you request. It is such a blessing that you are all back home for the treatment, and we feel like the treatment plan along with all the prayers will end up with your dad being healed (even though he may be bald and stuck with a chauffeur for a bit) Please know that all of you in NC remain a constant in our thoughts and prayers.

    David and Keri

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